After a year and a half of serving patients, we aim to grow our personalised medicine services digitally to expand our reach to more people. With scaling comes hard choices. We want to let you know that we will continue to live the values that made us to what we are now. Here are our set of our non negotiable rules to work by; where we strive for excellence in all things:
1) Data Security
Data security is a must in any digital app nowadays, and even more so when we handle genomic and phenotypic data. We aim at the highest health data security standards.
Doctors take the Hippocratic Oath. As digital health engineers, we commit to following the guiding principles for ethics in digital health. Our users can opt-in to give data to research and the data we share is only to improve outcomes. We are independent, with no affiliation to pharmaceutical groups or healthcare institutions. The information created by our digital tools is to strengthen the voice of people with a life-changing disease and their families in care decisions, help educate and inform, improving communication, and trust with healthcare professionals.
We help people differentiate us from unreliable sources of information, and we take responsibility to obtain the trust of the medical profession by using transparent assessment criteria of evaluated diagnostics and treatments, of healthcare institutions, specialists, subject expert matters and diseases organizations. We also encourage our users to provide their feedback and we act on it.
3) Human connection and emotional support
Taking the time to listen and to explain what is happening is extremely valuable for the people we serve. Our experience taught us that this human connection is so important that it cannot be removed, even when we’ll grow digital. By offering a single point-of-contact through the healthcare journey, we see our cases entirely. It is indispensable when working with personalized medicine.
All information we provide must be based on scientific evidence. There is a wide range in evidence quality. The level of uncertainty and the risks associated must be explained, in terms that make sense to the people we serve. It must also quickly make sense to their doctors, who will be taking the clinical decision, and who must do so with limited time at hand.
Molecular data is complex, and nearly useless without proper clinical context. It is also a field of rapid discoveries and tremendous amount of scientific data and literature is published every day. It is challenging to keep current, and to make sense of complicated genomic interpretation reports.
For us, actionability means that we effectively guide the decision, by focusing on information that can predict how a person will respond to a specific drug, to know which biomarkers to test, how to order them and at which costs, to opt-out of ineffective treatment, to receive tailored therapies, to understand therapies currently researched on the specific tumor profile, or to enroll into risk-based behavior change programs (such as a keto diet in combination with standard treatment for fast-growing cancers).
6) Translational and Interdisciplinary
People with life-changing disease for whom the standard treatment stopped working need to switch between research and the clinical patient pathway. Our solution must cater for the collaboration needs of an interdisciplinary group of technologists, researchers and clinicians – regional and international – and people and their families.